Publications

The 2024 World Dementia Council Summit took place March 2024 in London at the Francis Crick Institute. The summit brought together over 150 global experts who debated the decade ahead and the challenges facing the field. Read their perspectives on the changing landscape in treatments, care, prevention and awarness globally as the first treatments begin to reach patients. 

At the high-level governemnt meeting hosted by the governemnt of the Netherlands a new communique on dementia was agreed. The communique commits to the establishment of a new international governmental body on dementia and the establishment of a new international prize for leaders in the dementia field. 

Read a second collection of essays from international leaders in demenita on better diagnosing, delivering new treatments into health systems, preventing dementia and improving care. The collection was written in advance of a high level conference on dementia that was hosted by the government of the Netherlands. 

Read the conversation at the World Dementia Council Summit 2023 on timely diagnosis with Fiona Carragher, Chief Research and Policy Officer, Alzheimer's Society, Professor Giovanni Frisoni, Geneva University Hospital and University of Geneva, Phyllis Bakeman Ferrell, Global Head of Exeternal Engagement for Alzheimer's Disease and Neurodegeneration Eli Lilly and Jetske van der Schaar, PhD Research University of Amsterdam

Read the transcript from the World Dementia Council summitt 2023 of the conversation on the development of future treatments with Dr Heather Snyder, Vice President Medical & Scientific Relations, Alzheimer's Assoication, Professor Caleb Webber, Director of Informatics, UK Dementia Research Institute, Dr Howard Fillit, Co-Founder and Chief Scientific Officer Alzheimer's Drug Discovery Foundation, Dr Laurence Barker, Partner Dementia Discovery Fund and Dr Susan Kohlhaas, Director of Research ARUK.

Conversation from the 2023 World Dementia Council Summit on post diagnosis health and care support with Professor Alistair Burns CBE, Professor of Old Age Psychiatry and NHS England Dementia Lead, Laurence Geller CBE, Chairman Geller Capital Partners, Ernst van Koesveld, Director General Longterm Care, Government of Netherlands, Professor Anja Leist, Associate Professor in Public Health and Ageing University of Luxembourg and Dr Andrew Trister, Deputy Diretor, Health Artificial Intelligence, Bill & Melinda Gates Foundation. 

The Council has published a transcript of the conversation at the World Dementia Council summit 2023 on prevention and dementia with Matthew Baumgart, Vice President of Health Policy Alzheimer's Assoication, Professor Miia Kivipelto, Professor in Clinical Geriatrics, Karolinskka Institutet, Professor Johannes Streffer, CMO, AC Immune and George Vradenburg, Co-chair, Davos Alzheimer's Collaborative.

The Council has published a transcript of the conversation at the World Dementia Council summit 2023 on biomarkers with Professor Karen Duff, Centre Director and Professor at UK DRI and University College London, Brad O'Connor, CEO Cogstate, Dr Ivonne Suridjan, Director, Global Clinical Development & Neurology Indication Leader Roche, and Professor Charlotte Teunissen, Professor of Clinical Chemistry, Amsterdam University Medical Center.  

Read the conversation at the World Dementia Council Summit 2023 on equity in an era of treatments with Professor Ricardo Allegri, Director of the Ageing and Memory Centre at FLENI, Paola Barbarino, CEO Alzheimer's Disease International, Professor Howard Bergman, McGill University and Dr Tarun Dua, Unit Head, Brain Health, World Health Organization

Conversation from the 2023 World Dementia Council Summit on the challenges of clincial meaningfulness with Professor John Harrison, Chief Scientific Officer, Scottish Brain Sciences, Professor Gillian Leng, Dean for the Royal Society for Medicine and former CEO of NICE, Professor Mark McClellan, Professor of Business, Medicine and Health, Duke University and former administrator of Medicare and Medicaid and commissioner of the FDA and Dr Bill Reichman, President and CEO of Baycrest Health Science Centre.   

Read a collection of essays from international leaders in dementia published ahead of a virtual summit hosted by the government of the Netherlands in October 2023. Read the essay collection here.  

Conversation from the WDC Summit 2022 session looking at the development of new treatments with Professor Bart de Strooper director of the Dementia Research Institute, Dr Maria Carrillo, Chief Scientific Officer Alzheimer's Association, Professor Colin Masters, University of Melbourne and Dr Nadeem Sarwar, Global Head for Genomics Strategy, Eisai. The session was introduced and chaired by Dr Howard Fillit, co-founder and Chief Scientific Officer ADDF.

The dialogue on health system challenges was chaired by Professor Philippe Amouyel, University Hospital of Lille. Professor Sube Banerjee, University of Plymouth, Dr Joanne Pike, Alzheimer's Association, Professor Viji Ravindranath, National Brain Center, India and Dr Gustavo Sevlever, Chairman, Neuropathology Department FLENII Argentina shared perspectives. The transcript is now available.

The Council has published a transcript of a conversation from the WDC summit on prevention and brain health. The participants were Professor Kaarin Anstey, University of New South Wales, Professor Miia Kivipelto, Karolinska Intitutet and Sarah Lenz Lock, ARRP. The session was moderated by Hilary Evans, CEO Alzheimer's Research UK.

Transcript from the WDC Summit 2021 session looking at how the research and policy landscape is facilitating the development of new treatments, the current state of global coordination, and assessed the levels and models of funding to support research.

Transcript from the WDC Summit 2021 session looking at innovations and incentives in the drug discovery process, examining what the role of funders, regulators and industry is in developing the research landscape.

Transcript from the WDC Summit 2021 session looking at data sharing for dementia research, assessing how we can maximise the benefits of big data developing global cohorts, the comparability and sharing of data, and  how we can overcome regulatory barriers.

A transcript from the global dialogue of international leaders in dementia discussing the challenges and opportunities faced by early career scientists in dementia, part of the dementia landscape project

A transcript from the global dialogue of international advocates discussing the challenges and opportunities from the perspective of people with lived experiences of dementia, part of the dementia landscape project

A series of essays from international leaders in dementia offering reflections on the conversations had during and after the global dialogue on data sharing for dementia research, part of the dementia landscape project

A transcript from the global dialogue of international leaders in dementia discussing the challenges and opportunities faced for the readiness of health systems, part of the dementia landscape project

A transcript from the global dialogue of international leaders in dementia discussing the challenges and opportunities around psychosocial research in dementia, part of the dementia landscape project

A transcript from the global dialogue of international leaders in dementia discussing the challenges and opportunities faced around non-amyloid targets for disease modification, part of the dementia landscape project

A series of essays from international leaders in dementia offering reflections on the conversations had during and after the global dialogue on dementia and an ageing society, part of the dementia landscape project

A transcript from the global dialogue of international leaders in dementia discussing the challenges and opportunities faced by ageing societies, part of the dementia landscape project

A transcript from the global dialogue of international leaders in dementia reflecting on the challenges and progress in clinical trials, part of the dementia landscape project

A transcript from the global dialogue of international leaders in dementia discussing data sharing for dementia research, part of the dementia landscape project

A series of essays from international leaders in dementia offering reflections on the conversations had during and after the global dialogue on dementia in low- and middle-income countries, part of the dementia landscape project

A transcript from the global dialogue of international leaders in dementia assessing progress made in dementia in LMICs, in particular the challenges and opportunities including around setting up and running trials, part of the dementia landscape project

A series of essays from international leaders in dementia offering reflections on the conversations had during and after the global dialogue on technology and dementia, part of the dementia landscape project

A transcript from the global dialogue of international leaders in dementia exploring technology in prevention and the maintenance of brain health, technology to maintain and improve daily function, and technology that assists in the provision of patient-centred health and social care, part of the dementia landscape project

A series of essays from international leaders in dementia offering reflections on the conversations had during and after the global dialogue on dementia prevention, part of the dementia landscape project

A transcript from the global dialogue of international leaders in dementia examining the evidence base for dementia prevention programmes and some of the current research happening in the field, prevention programmes and their practical implementation, as well as some of the lessons from other public health initiatives, part of the dementia landscape project

A series of essays from international leaders in dementia offering reflections on the conversations had during and after the global dialogue on dementia care, part of the dementia landscape project

A transcript from the global dialogue of international leaders in dementia discussing the progress made in the field of care and the challenges that remain, exploring models of care, the burden of caregivers, and art and music in dementia, part of the dementia landscape project

In the first of a series of papers, this publication considers what different countries, organizations and individuals mean by “dementia friendly” and what the projects are trying to achieve.

A series of essays from international leaders in dementia offering reflections on the conversations had during and after the global dialogue on biomarkers and treatments, part of the dementia landscape project

A transcript from the global dialogue of international leaders in dementia discussing blood-based biomarkers and advances in treatments, part of the dementia landscape project

An evidence paper prepared by Tomo Takasugi (research officer at Sompo Research Institute Inc) and Katsunori Kondo (professor of social epidemiology and health policy at the Center for Preventative Medical Sciences, Chiba University) informs the dementia friendly initiatives project about dementia risk factors and risk reduction efforts in Japan. The evidence submitted in this paper is solely the independent work of the authors.

In the second of a series of papers, this publication reflects on evidence underpinning the impact of dementia friendly initiatives and explores the evidence for impact of initiatives at a local, national and international level.

Evidence for the dementia friendly initiatives project was collected from several contributors – academic papers and published literature, surveys, and roundtables – to provide a global assessment of dementia friendliness. The project has drawn on a variety of experts, including most importantly people with dementia and caregivers, as well as activists, volunteers, third sector organizations, academics, policymakers and leaders within the dementia movement.

All persons affected by dementia – those living with the diseases that cause it, their care partners, and their family and friends – have a right to receive the highest quality care and support possible to meet their needs. But today too many people struggle to access good quality care. In May 2017 the WDC developed a global consensus statement on good quality care.

The World Dementia Council produced a review in March 2017 taking stock of the evolution of the organisation. It details the steps taken to enhance our ability to fulfil our remit of leading the global fight against dementia.

In July 2015 WDC member Raj Long published an independent report into an integrated approach to dementia research. Raj is Senior Regulatory Officer (Integrated Development), Bill and Melinda Gates Foundation and Director, Integrated Development, UK Department of Health.

Launched in December 2018, the WDC produced a five-year progress report to focus on the international community’s work towards the 2025 dementia goals. These goals are focused around four key areas: a disease-modifying therapy, living well, care, and reducing the impact of dementia. The report provides a review of what has happened in each area – what advances have been made, where activity has lagged, and what action the international community needs to take to accelerate progress.