Presenting a global evidence base

The World Dementia Council is leading an international network of organisations to investigate and report on the global evidence base for the delivery of meaningful Dementia Friendly Initiatives (DFIs). The evidence gathering project is running throughout 2019 and will culminate in a report published in early 2020.

It has long been recognised by policy makers that inclusion of people in society, as society’s age, requires active policy solutions. The Madrid Action Plan of Action on Ageing (2002) recognises government’s must “seek the full inclusion and participation of older persons in societies; to enable older persons to contribute more effectively to their communities and to the development of their societies; and to steadily improve care and support for older persons as they need it”.  The G8 London Dementia Summit (2013) communique committed governments to “disseminate successful approaches to supporting people with dementia and their carers including… community-based programmes fostering inclusion and improved quality of life”. The G20 heads of state summit in June 2019 as part of the Japanese G20 presidency committed “We will implement comprehensive set of policies to address dementia, including promoting risk reduction and sustainable provision of long-term care as well as inclusive societies aiming to improve quality of lives of people with dementia and caregivers.” The World Health Organization has, as part of the Global Action Plan, set an ambition that half of countries has at least one dementia friendly initiative by 2025 and is publishing a toolkit to support this work later in the year.

Under this policy umbrella, and in the face of the demographic and health challenge, over the last decade there has been a growth in “dementia friendly initiatives” and also “age friendly initiatives” often with some overlap between the two. There is considerable diversity associated with these initiatives: in how they are established and run; in geographical reach; and in the impact they intend to have. 

There is an increasing recognition that there is a need to establish what evidence of impact their is for these initiatives. Governments, providers and civil society are all beginning to address this challenge around the world. This evidence gather project will identify the key evidence that exists and evidence gaps.

Partners

The WDC is proud to be partnering with Alzheimer’s Society (UK), AARP (US), HGPI (Japan), all from nations at the forefront of pioneering dementia friendly initiatives since 2013, and each uniquely placed to bring together policy and evidence from around the world. We are also pleased to be collaborating with ADI, as well as working with the WHO which is developing a toolkit to provide key support to member nations looking to develop dementia friendly communities.

 

Call for evidence

We would like to hear from you

By answering this survey, you will be contributing to the report. Please take this as an opportunity to champion your work and help us promote activities for people affected by dementia.

Every day, individuals and organisations right across the globe are involved in dementia friendly initiatives. They are at the forefront of the design, provision, delivery and assessment of widely-varying initiatives to help people living with dementia lead better quality lives in the community. Through our international network we are bringing together these individuals and organisations to assess the impact of their work.

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This survey is not designed for people with dementia. Please see below (blue icon) if you are someone living with dementia who wishes to make a contribution. We currently have versions of the survey in English, Chinese and Spanish. We are hoping to release in more languages shortly.


Survey - for people living with dementia
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Survey designed for people with dementia

Please find here (blue icon) a page containing the two surveys we have designed for people living with dementia, which we hope you will find more useful.

There are two parts to the survey designed for people living with dementia, assessing impact and involvement. Please complete both parts of the survey.

We would encourage respondents to engage appropriately with people affected by dementia to gather their responses. We will be engaging further with people living with dementia through face-to-face interviews to ensure all views and priorities are included in the report.


Please return completed surveys and any accompanying evidence by 30 October 2019
 

All published reports or academic research will contribute to the report’s findings and where appropriate, will be credited to the authors. All evaluation and impact evidence will be anonymised and grouped into countries or regions. All contributions will be treated in confidence.

 

Satellite event at AAIC19 — Los Angeles, US

As part of our ongoing review project, the WDC co-hosted with AARP a satellite event at Alzheimer's Association International Conference 2019 to discuss the evidence base for delivering meaningful dementia friendly initiatives.

Satellite

The event brought together stakeholders from across the world to discuss how dementia friendly programs are simultaneously seeking to change society whilst providing support for people with dementia. You can read more about the event in our news article here.

 

Satellite event at AAICSS — Sydney, Australia

Following the meeting in Los Angeles, the WDC also worked with the Government of Australia to gather another global group at the Alzheimer's Association Satellite Symposium, to further discuss designing and delivering meaningful dementia friendly initiatives around the world.

Sydney